{"id":14864,"date":"2020-02-27T12:00:29","date_gmt":"2020-02-27T11:00:29","guid":{"rendered":"https:\/\/www.schuchmann.ch\/?p=14864"},"modified":"2020-02-28T12:36:49","modified_gmt":"2020-02-28T11:36:49","slug":"rare_disease_day_2020","status":"publish","type":"post","link":"https:\/\/schuchmann.ch\/fr\/rare_disease_day_2020\/","title":{"rendered":"300 millions de personnes dans le monde ont besoin d&rsquo;attention"},"content":{"rendered":"<p><strong>Toutes les Journ\u00e9es mondiales de la sant\u00e9 ont un objectif : sensibiliser aux maladies et \u00e0 la vie des personnes touch\u00e9es. Le 29 f\u00e9vrier est un tel jour pour environ quatre millions de personnes en France. La date n&rsquo;est pas choisie au hasard. L&rsquo;ann\u00e9e bissextile est un \u00e9v\u00e9nement tout aussi rare. Lors de la Journ\u00e9e des maladies rares, nous nous concentrons sur les personnes et leurs maladies pour lesquelles il y a peu ou pas de chances de gu\u00e9rison, de th\u00e9rapie ou de m\u00e9dicaments. <\/strong><\/p>\n<p>De nombreuses personnes n&rsquo;ont certainement jamais entendu parler de la maladie de Huntington, du syndrome FOX G1, de la maladie de Charcot-Marie-Tooth ou de la scl\u00e9rose lat\u00e9rale amyotrophique. Certaines de ces maladies sont extr\u00eamement rares et, \u00e0 la grande consternation des personnes touch\u00e9es, peu de recherches sont effectu\u00e9es.<\/p>\n<p>Pour les personnes concern\u00e9es, cela signifie de grandes difficult\u00e9s dans leur vie quotidienne. En plus des innombrables visites chez le m\u00e9decin, des s\u00e9jours \u00e0 l&rsquo;h\u00f4pital et des s\u00e9ances de th\u00e9rapie, ils supportent souvent de grandes douleurs. En raison du manque de r\u00e9sultats de recherche, le doute r\u00e8gne m\u00eame chez les m\u00e9decins et il y a donc un manque d&rsquo;aide appropri\u00e9e.<\/p>\n<p>Mettons les maladies rares davantage en \u00e9vidence. La recherche et la science ne doivent pas rel\u00e2cher leurs efforts pour identifier les maladies et doivent d\u00e9velopper des th\u00e9rapies et des m\u00e9dicaments appropri\u00e9s.<\/p>\n<p>Votre \u00e9quipe Schuchmann<\/p>\n<div   class='av_promobox  avia-button-no   avia-builder-el-0  avia-builder-el-no-sibling '><div class='avia-promocontent'><p>\n<strong>Qu&rsquo;est-ce qu&rsquo;une maladie rare ?<\/strong><\/p>\n<p>Plus de 300 millions de personnes dans le monde vivent avec une maladie rare. Jusqu&rsquo;\u00e0 pr\u00e9sent, environ 6000 maladies rares ont \u00e9t\u00e9 identifi\u00e9es.<\/p>\n<p>72% des maladies rares ont une cause g\u00e9n\u00e9tique. D&rsquo;autres sont le r\u00e9sultat d&rsquo;infections (bact\u00e9riennes ou virales), d&rsquo;allergies et de causes environnementales.<\/p>\n<p>Une maladie est d\u00e9finie comme rare en Europe si une personne sur 2000 est atteinte.<\/p>\n<p>Pour plus d&rsquo;informations sur la Journ\u00e9e des maladies rares, cliquez <a href=\"http:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">ici.<\/a><\/p>\n<\/div><\/div>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>29. Februar &#8211; Rare Disease Day Il y a plus de 300 millions des personnes vivant avec un maladies rares dans le monde. <\/p>\n","protected":false},"author":18,"featured_media":14860,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[477,659,660,661,662],"class_list":["post-14864","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","tag-schuchmann-fr","tag-medicaments","tag-maladies-rares","tag-rare-disease-day-fr","tag-therapie-fr"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>300 millions de personnes dans le monde ont besoin d&#039;attention - Schuchmann GmbH &amp; Co. KG<\/title>\n<meta name=\"description\" content=\"29. Februar - Rare Disease Day Il y a plus de 300 millions des personnes vivant avec un maladies rares dans le monde. 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